What It Was Like To Have an Endoscopy

Backstory first, because it has been so long since we last discussed this. (You can skip four paragraphs if you don’t need backstory and just want to hear the endoscopy described.) Very long ago, like three years ago, I started having some trouble with tightness in my throat (it felt like anxiety, but happened even when I was not anxious); also, every two or three weeks I would swallow something and it would feel like it got stuck, and it would be very painful for a few minutes until it finally went down. I wasn’t choking: I could still breathe. But it felt terrible and gross and scary, and it hurt a lot.

And so two and a half years ago, after it had happened enough times that it didn’t seem like it was just a fluke, I went to the doctor, who said it could be reflux, which surprised me very much because I didn’t feel like I was having any kind of heartburn symptoms. She further said that my light persistent cough could ALSO be reflux/heartburn, which I doubted: we have a lot of respiratory/asthma/allergy stuff in the family, so that seemed like a more likely explanation path to pursue than heartburn I wasn’t feeling.

She started me on a daily dose of omeprazole, which almost immediately stopped both the coughing and the problems with swallowing. (It is as if doctors possess a level of expertise and knowledge that I do not possess.) She also sent me for a barium swallow test, which didn’t show any clear reason for the symptoms. So she referred me for an endoscopy; she said to give her a call if they hadn’t contacted me within a couple of weeks. I don’t want to talk much about this, but let’s just say that no endoscopy was scheduled, and I could not GET an endoscopy scheduled, and calls/letters to everyone involved made no difference, and it was inexplicable and baffling, and I finally gave up in despair, and I have no answers for any of your very reasonable questions.

At my recent physical, my doctor said “Hey, did you ever have that endoscopy?” and I was like “???!!!!????!!! THANKS FOR FINALLY TUNING IN” and was literally more like “They didn’t ever…and I called?…but they still didn’t…and then I called here?…but nothing happened…and I sent you a letter?…but nothing ever?…” She said, wait a second, was that like two years ago, and I said yes, and she said things were very bad at that GI’s office then, and also the hospital has added a second GI since then, and let’s try again now…and if they didn’t get in touch within a couple of weeks, just give her a call (????!!!!????!!!!OMG). She said even though the omeprazole was completely handling the symptoms, I was too young for her to say “Yes, just keep taking omeprazole daily for the rest of your life” without doing the endoscopy first. I was like well that’s GREAT, and I join you in this version of reality where I can actually GET an endoscopy.

The GI’s office called the very next morning and set up the endoscopy. So now after four paragraphs, we are finally coming to the topic advertised.

Procedure-wise, it’s in the only-slightly-big-deal category. A half-dozen-page packet arrived after they scheduled the appointment, containing highlighted instructions for “7 days before,” “3 days before,” “the night before,” etc. There were some mild restrictions the week before: no multivitamins with iron, no iron, no fish oil, no vitamin E, that kind of thing. There was a one-sided page of paperwork to fill out: medications, health conditions, drinking/smoking confession.

The hospital called to do pre-registration: name, DOB, address, insurance, employer. I couldn’t have any food after midnight the night before, but I could have liquids (including soda, juice, sports drinks, coffee) up to three hours before the arrival time. I had to bring someone with me to drive me home afterward.

When I arrived at the hospital’s endoscopy department, I checked in and they had me look over a page of information to make sure it was accurate, and they gave me a hospital bracelet. Then a nurse called me in and showed me to one curtained area in a room full of curtained areas; I could easily hear the questions/answers as other nearby patients went through their pre-procedure process. I had to take off shirt and bra and put on a hospital johnny, but I was allowed to keep on my pants/socks and even my shoes.

The nurse asked me some questions, including when I’d last taken medications and when I’d last had anything to eat or drink, and then put in an IV. She told me roughly what would happen during the procedure and how long it would take, and that I would not be conscious so don’t worry about any of the things she was describing. She said to expect a quick visit beforehand from the anesthesiologist and from the doctor who would be doing the procedure. Those two visits came to pass; they seemed more like “Here, you can look at my face first so this doesn’t seem so impersonal” plus asking me twice more when I’d last had anything to eat or drink. This whole part, from the nurse bringing me to the curtained pre-procedure area until I was being wheeled into the procedure room, took approximately one hour; most of it was sitting in a hospital bed and waiting and listening to other patients answer questions. One woman there for a colonoscopy was very funny about it.

The procedure nurse came to wheel me into the procedure room; it was a small room, like the size of a regular doctor’s exam room, not like a big operating room; it was quite crammed full of equipment. I was fairly nervous by this time. They took my vital signs again, confirming nervousness. The nurse anesthesiologist was there, and explained that once the doctor arrived she’d put the sedative (propofol) into my IV. She put those little oxygen prongs into my nostrils, saying “Everyone gets extra oxygen,” and put those little sticky monitoring pads on various parts of my chest. They had me lie on my left side; they put a prop behind me so I couldn’t roll back. The nurse stayed in my field of vision and kept updating me on what was happening and why, which I found reassuring. The doctor arrived; the nurse anesthesiologist started the sedative and said I might feel dizzy at first; she said I should breathe in through my nose. I did feel pleasantly dizzy/buzzed. Out of curiosity, I counted how many seconds I stayed conscious after the dizzy feeling started; I got to 14.

The procedure itself takes less than 10 minutes; it’s the prep/recovery that takes up the time. I had an arrival time of 1:00; I was being wheeled in there shortly after 2:00; and I was in Recovery before 2:30 (I’m not sure exactly when I arrived, but when I asked the time it was 2:30). I woke up hearing someone say “It’s all done!” and my memory is fuzzy but I think I was being wheeled into the little recovery bay at the time. I was sleepy but felt fine; my pillow was drooly, which I didn’t notice until the nurse thoughtfully flipped it over for me. She asked if I wanted Paul called in, and I said not yet. She had me roll back onto my back, and then she raised me into more of a sitting position, and she offered coffee/tea/juice/water/muffins/crackers. I had some coffee, and over the next ten minutes or so I returned to feeling basically normal. This is when they called Paul back to join me. I was in Recovery for about half an hour total; then they had me get dressed, and Paul and I were moved to more of a consultation room, where we waited to have a chat with the doctor who did the endoscopy.

We waited twenty minutes or so, and then the doctor came in very briefly, very friendly but definitely in a hurry, just to give preliminary results. He’s going to wait for the biopsy results to come back, and then send a report to my primary doctor to give a full report and his recommendations. But he says it looks to him as if I should continue to take the daily omeprazole: it’s handling the symptoms completely without having any problematic side effects. He saw some stuff that explains why I’m having difficulties, but it’s nothing that needs to be fixed unless it starts causing me more difficulty than it’s currently causing.

They warned me I might have a sore throat afterward; mine was not sore, but my voice was a little hoarse and I felt like I needed to clear my throat more often for a few hours. My tongue also felt weird for a day or two afterward. Like, you know when you’re sick and your tongue gets too dry while you sleep, and it feels so gross like a dry sponge, and even after you get a drink of water your tongue feels a little weird/wrong for awhile? There was a part of my tongue that felt like the post-rehydration version of that.

The entire thing was less than 2.5 hours from arrival to departure, and if I had to have it done again I’d be a LOT less nervous–and frankly kind of looking forward to the propofol.

Surprising News About Men and How They Pee

Paul was complaining to me about some shorts he found in the bottom of his drawer after he ran of out his usual shorts. He didn’t really like the fit or the length, which was fine, let’s donate them so you never wear them again. But then he said he remembered the REAL reason he had stuffed them way at the bottom of the drawer, which was that the front had to be pulled down for him to pee.

I don’t know how long I stared at him blankly before I managed “…As opposed to WHAT?” It turns out boys, or at least SOME boys, actually USE those little hatches on the fronts of their pants/underwear to pee. I guess I was assuming…well, I don’t know what I was assuming. Because why would the hatches BE there if no one used them? But it seemed like such an unlikely thing: to undo two little hatches, to reach a hand inside and… Well. I don’t know exactly what I thought, but I suppose I was thinking the little hatches were decorative/traditional remnants from another, more primitive time.

Paul was, understandably, more on the “Why would they BE there otherwise?” side of the discussion, but it was taking me awhile to let this new information sink in. I mean, imagine if women’s clothes had similar hatches: little snap-flaps between the legs of all our pants/shorts/underpants. Imagine if we just opened those hatches and then peed through them, because it was TOO MUCH TROUBLE to pull down the pants/underpants.

Considering women do NOT have such snap-flaps, it felt even more absurd to have a man telling a woman that he rejects an entire pair of shorts because those shorts force him to pull them PARTLY down in front in order to pee. Oh, how very difficult! Oh, the inconvenience! Imagine having to PULL DOWN a pair of shorts in order to pee! Who could be asked to live that way?? It is unacceptable!! “…I guess I’m complaining to the wrong person,” said Paul.

New Job

I am so busy. I am so tired. I’d thought I had a fair amount of extra time, but I added a part-time job and now I am run off my feet and stressed and tired all the time, not to mention losing all my Candy Crush streaks.

It is at least a job I like. I am working mornings at the library. I’m a page, which means I re-shelve things and fetch things and collect materials from the book-drops. I don’t know if I will like it long-term (I seem to like jobs for six months and not any longer than that), but we will see. I like being at the library. I like library stuff, and library activities, and library fundraisers. My co-workers are smart, which is nice for an entry-level job. And something about putting things in decimal order does something therapeutic in my brain.

Also, the work is surprisingly physical. I have had to deliberately switch which knee I naturally kneel down on, so that I wouldn’t get one leg so much more exercised than the other. I am the indoor type, so this is an improvement in my usual physical activity levels.

It feels like a financially/mentally/physically good change in many ways, but also I am so busy and tired. And, more importantly, things like “Oh, Edward has to go for another follow-up appointment” are HUGELY stressful, now that I have to continually ask for the time off from work. I started the job two days after we came home from the hospital after his first surgery, so I’ve already had to ask for many, many schedule changes, which makes me feel unreliable and difficult when I KNOW I am NEITHER. It would be so much better if this had happened after, say, two full years of showing up five to ten minutes early, leaving five to ten minutes late, and never missing a shift without giving two weeks’ notice.

And without the recent Edward complication, this job meets all my weird job requirements for this stage of life. It’s part-time. It gives me a pleasing answer to the “And what do you do?” question, which is higher on my list of priorities than you might expect. It’s moderately flexible. It’s nearby. It’s not a “warm body” job: if I have to have a day off every seven weeks for Edward’s Remicade infusion, they don’t have to find a substitute for me as they would if I were a bus driver or a caregiver; on that same note, I won’t be called EVERY SINGLE DAY and asked to cover shifts for other employees, as I was with my last warm-body job. It’s entry-level, but not fast-food or retail or customer service. It’s indoors, and a comfortable temperature. There’s room for learning more skills and adding more hours as time goes on. (It doesn’t pay well, but with a list like that, SOMETHING had to give.)

And I do like the work. The other day, I went home after my shift and had lunch, and then texted my supervisor to ask if she wanted me to come back for a couple of hours, because I’d had to leave a TON of work behind (the long weekend meant a FULL book-drop) and I found I was itching to get back to it. Like, I WANTED to do it. And another day, I was re-shelving some books in the New section, and a patron asked if I’d recommend any of them, which was on one hand WAY too much pressure, and on the other hand I COULD recommend one of them, and then she sat in a chair in the library reading it for like an hour, and then checked it out!! That is close to the level of thrill I used to get at the doughnut shop when someone would let me pick the doughnuts for their dozen.

Things That Have Made Me Sad Since William Left for College

Things that have made me sad since William left for college:

• Mistakenly thinking I heard the washing machine going (it was someone doing dishes) and briefly assuming William must be doing laundry, then realizing William is no longer here and so is not in my way doing his laundry. This should have been a happy thought but WAS NOT.

• Finding in the laundry room a last basket of clean laundry scraps from William doing all the rest of his laundry and then leaving behind the cloth napkins, dishtowels, handkerchiefs, aprons, and other things that were tossed into the empty washing machine and so got mixed in with his things.

• At the grocery store, not needing to buy pasta, pasta sauce, buffalo chicken patties, or frozen burritos. (These are the things William makes himself for Second Dinner.)

• Briefly thinking we should wait until William gets up to see if he wants to go to Target with us.

• Getting a dozen doughnuts (a family tradition after anyone has a medical procedure) and doing the Doughnut Math wrong. (The children don’t understand why this one made me sad instead of happy, since it means more doughnuts for each of us.)

• Going into William’s room to make sure he didn’t forget anything important, and not needing to knock.

• Going into William’s room to look for the cat, and seeing the bed stripped, and the cat sitting on the folded comforter.

• Talking with Paul about something related to Thanksgiving, and saying “the boys” will probably be home for that.

• Putting out only three plates for kid dinner. Getting out only three vitamins.

• Doing all meal math wrong, then correcting it. “Let’s see, toasted cheese, I need 8 slices of bread…no, 6.”

• Doing Child Inventory and briefly thinking William is at work or up in his room, instead of at college.

Second Sinus Surgery

I am worn out and wan, and WordPress just told me I failed to “prove my humanity” by correctly answering a math problem, which was 3 + 1 and I am just CERTAIN I got it right, but I have to live with the idea that I will never be able to achieve vindication on that.

This past Tuesday, Edward had a follow-up with the surgeon for his sinus surgery. The surgeon took one look at him from across the room (Edward’s eye area was still slightly puffy, and a little lump had appeared along the bridge of the nose the day before) and switched us to a different exam room, one with a giant up-the-nose camera system. He looked up Edward’s nose and ordered another CAT scan, which he said he’d be able to review the next day. The next day the office called to say we had another surgery and overnight hospital stay scheduled for Friday.

It was another abscess, in the sinus near the side of the bridge of his nose. The surgery was done partly by going up through the nose, and partly using a 1/4-inch incision on the side of the bridge of the nose (no stitch because they wanted it to drain). I don’t remember all the right terms, but the infection there had broken through the barrier between that sinus and the area where the eye is, so we had to have the whole ophthalmology-doctor experience over again, with her suitcase and the eye drops; she said the eye still looks unaffected but we have to go back and see her in a month.

We also had a visit from a doctor from Infectious Diseases, because ENT wants him on an entire additional month of antibiotics, and especially with his Crohn’s disease (but even without it), that’s something they like to take extra care with. She seemed very, very bored with us, which is an encouraging if annoying thing for a specialist to be. We will see her again in a week, at the follow-up with the ENT surgeon.

(Also, last time we were at the hospital it was freezing, and all the staff were wearing fleece with their scrubs, and I wore my cardigan the whole time and was cold at night even under the covers. So this time I was smart and wore jeans and brought a warmer cardigan. And our room was nearly 80 degrees and I slept with no covers on and was constantly slightly sweaty. One of the nurse assistants told me they are working on the broken air-conditioning room by room.)

I put a little rant-question on Twitter last night about how to administer an every-8-hours antibiotic (when the specialists emphasized it should REALLY BE every 8 hours), without having to wake the child or disrupt the school day, and I took the tweets back down because I realized I already know the answer to that, and it’s that you can’t, and you just have to figure out what you’re going to do: fudge the 8 hours or else DO IN FACT wake the child and/or disrupt the school day. There’s no weird schedule thing I’m missing where it does work.

The lovely thing about the timing of the surgery is that he has this long weekend to recover. The downside is that I am increasingly concerned as his Remicade infusion (for the Crohn’s disease) gets more and more overdue (he missed it when he first came down with the sinus infection near the first week of August), and I need to call his GI specialist to ask about that, and I also want to be reassured that ENT and Infectious Diseases really did consult with them about the antibiotics plan, but I can’t do that until Tuesday. Well, no, I could do that right this minute and talk to whoever is on call. But it is not that much of a thing to me. Like, I have already worked through the “You REALLY CAN call the person on call; that is WHY they are on call” thought process, and I DO KNOW I could call, but it REALLY ISN’T that urgent to me: he can’t have his Remicade infusion over the long weekend ANYWAY. I can wait until Tuesday to hear about when he CAN have it.

Also William is now at college, and also I have been working at a new part-time job for two very poorly-timed weeks, and those things are adding significantly to my worn-out wanness so I mention them here but will have to talk more about them later.

Packing List for a Hospital Stay with a Child

One of the most satisfying things that happened in the hospital:

We’d checked in on Tuesday night. I was okay with skipping showering on Wednesday. But by Thursday, especially after all that adrenaline, I was feeling a little grim. I’d brought fresh socks/shirts/underwear, and I had deodorant and a toothbrush; I’d done what I could with the public-restroom-style brown paper towels and the antibacterial handsoap. But still. My hair was feeling bad, and I’d been sleeping in my clothes, and I only had one pair of pants, and my cardigan was already due for a laundering when I grabbed it on Tuesday. I was feeling stale and wilted, and my face looked so tired and stressed and dry in the fluorescent hospital lighting.

I looked online and found that there was a familiar chain drugstore just a couple of blocks from the hospital. I made one extremely brief attempt to get there (i.e., walking out the doors, looking around, realizing I didn’t even know whether to go left or right or what), then came right back inside and asked the Info Desk, and she was extremely nice and pointed me to a completely different exit door. I walked along the sidewalk, feeling the weird intimidated exhilaration of a town-mouse in a city, trying to be all cool about it, like “Yeah, here I am, in a city, no big, using crosswalks with crossing lights like it’s totally normal for me, stepping around piles of unknown substances like a boss!” Also feeling kind of oily and grubby, but better out in the fresh(ish) air and sunshine.

I found the drugstore, and I got a shopping basket, and then I spent some time there in a fugue state of happiness and gratitude, going up and down every aisle in a reverie. That such a store should exist! That it should exist within brief walking distance of the hospital! That I should be able to buy the things there that would make me so much more comfortable and happy! That I should be in the lucky percentage of the population that could do so without facing financial distress! Oh how wonderful to be alive!

Each thing on my hopeful list, I checked it off. A 2-in-1 conditioning shampoo! An inexpensive-but-familiar face lotion that would work well for day and night since no sunscreen was needed! A fabric-freshening spray! A bar of nice-scented soap! A travel-size toothpaste! A hairbrush! A 3-pack of underwear, which they happened to have in my size even though they had only half a dozen packages total! A 3-pack of socks! How lucky, how very lucky, how very very lucky!

I went back to the hospital with my bag of success, feeling as if I had conquered Rome in a peaceful way with no injury, death, or cultural suppression. I took one of the best showers of my life, right up there with the first shower after any of my c-sections; also up there with the first shower I took at home after attending, as a self-conscious and modest teenager, a weeklong camp where, as it turned out, there were cold-water showers, and everyone was undressing publicly where everyone waiting in line could see them do so, so I took one (1) total shower the whole week, and it was the one where I learned that these things were the case, and then no more after that until I returned home and showered for a long, long time.

In terms of cleanliness/joy, I felt like a woman in a shampoo commercial. And the whole hospital room smelled better, because of the soap (Yardley’s English Lavender) and the spray (Downy Wrinkle Release Spray Plus). I spritzed my pants with fabric refresher! I washed a shirt in the sink using the bar soap! It was a transformation, a game-changer. Everything was better after this outing/shower/day.

As satisfying as it was to solve the problem of not having those things with me, I have made a list for the future, in order to avoid having to solve that problem again except when absolutely necessary. Here is my new Packing List for a Hospital Stay with a Child:

Packing List for a Hospital Stay with a Child

laptop & charging cable
phone & charging cable
back-up phone batteries

books
snacks

travel backpack
purse
pillow
laundry bag

deodorant
hairbrush
toothbrush/toothpaste/floss
day/night face lotion
hair gel
hair clips & ponytail holders
medications/vitamins
little pill container
Downy fabric-freshening spray
2-in-1 shampoo/conditioner
bar soap

underwear
socks
shirts
spare pants
pajama pants
CARDIGAN

underwear for child
pants for child
one shirt for child
one pair socks for child
shoes for child
deodorant for child
toothbrush for child
hairbrush for child
child’s phone
books for child
comfy throw blanket for child

 

That looks like a huge list, but it all fit into a backpack and a tote bag, plus the throw blanket carried separately, and the pillow left behind in the car in case I didn’t need it (I didn’t).

CARDIGAN is all-capsed because the first draft of the list didn’t include it, and then I remembered it and was electrified with horror at the idea of forgetting it. The hospital was so chilly, I wore the cardigan around the clock and wished for a warmer(/cleaner) one.

My travel backpack is the one I use when Edward and I go to his Remicade appointments. It has in it a warm hat for him (he sometimes gets chilly during infusions), and an umbrella, and a bunch of ketchup packets (he usually prefers more ketchup than is provided with his hospital meal). Carrying some of my stuff on my back makes me feel less like I’m arriving with a huge pile of luggage.

“Little pill container” refers to the a pillbox I keep in my purse with a couple doses each of ibuprofen, benadryl, decongestants, caffeine, prescription tranquilizers.

It’s “one pair socks for child” because the hospital provides non-slip socks for the patient. So the child only needs a regular pair of socks for the trip home, as well as one pair of pants and one shirt for the trip home, because they wear a hospital johnny the rest of the time; or they might want another pair of pants to wear with the johnny, as Edward did. And you would think “shoes for child” would go without saying, since the child would be WEARING shoes, but I added it because I came very close to dropping Edward’s shoes off at home when I stopped there between ER and children’s hospital: he took them off in the ER, and then they took him by ambulance from there so he hadn’t put them back on, and I’d scooped them up with our other things.

“Comfy throw blanket” isn’t necessary if you’re traveling light, and neither was pillow as it turned out, but I like to think of those things and consider if I want them or not; and Edward has a favorite throw blanket he uses all the time at home, which turned out to be really nice to have with us.

More About the Sinus Infection That Led to Hospitalization

Some of you with a lot of sinus infections in the family wanted more information about how a sinus infection ended up in a Tuesday-Saturday hospitalization, and that is something I am not sure I can answer well: we DON’T get a lot of sinus infections at our house, which makes it hard to compare a typical one to this one. I got a sinus infection a number of years ago, and when my teeth started hurting I went to the doctor, and she gave me an antibiotic and I took it, and the sinus infection went away, the end. So that’s not super helpful. But I can tell you some of the miscellaneous things doctors mentioned as if they were important, and maybe those will make more sense to those of you with more experience.

One key element in Edward’s case is his Crohn’s disease and the immunosuppressant medication he takes to manage it (Remicade). One of the doctors said that this can make him vulnerable to some of the weirder little bugs that the rest of us would fight off easily.

This might be why the first antibiotic didn’t work: the pediatrician was assuming it was a sinus infection from one of the usual culprits, but maybe it was a weird culprit. Many doctors asked about MRSA and other antibiotic-resistant infections, and whether anyone else in the family had dealt with one. (No.)

Is it helpful to know that the ER doctor said the CAT scan showed allllll of the sinuses were infected? I didn’t know there WERE “allllll”; if asked, I would have thought there was one sinus that stretched across the face, or maybe two sinuses, one on each side—something like that. But there are sinuses up all the way around the cheek/eye region, and all of them were involved. I don’t know whether that’s typical.

The ER doctor mentioned that one sinus region (he pointed near his own eyebrow) has a membrane divider, and that there was so much infection in there, the membrane was “bulging,” and there was concern about rupturing. That’s just so gross.

An ENT doctor said that all the little passages up there were very small (that is, Edward’s set of passages were unusually small), and very swollen, so the sinuses couldn’t drain.

There was a lot of concern about the possibility of an abscess—a walled-off area of infection. If I’m understanding everything correctly, they did find one or two of these.

There was a lot of concern about his eye possibly being infected. The area around one eye was swollen and a light reddish-purplish color. (At one point it was swollen almost shut: that was after we arrived at the children’s hospital but before surgery.) Apparently it is not unusual for sinus infections to cause a little puffiness, but this must have been more than typical, because everyone involved was very interested, and we had an ophthalmologist in our room at 8:30 at night; she brought a suitcase of equipment. If there HAD been eye involvement, he would have needed immediate surgery that very night. Two doctors (the ophthalmologist and an ENT doctor) had a rather heated discussion about it right there in the room, when she (the ophthalmologist) had determined there was no eye involvement, and he (the ENT doctor) questioned her judgement and wanted to do another CAT scan “just in case.”

Something they found during surgery was that the flesh of his cheek was disintegrating. I will tell you that freaked me right out. The surgeon acted like that was a normal thing to say. I asked if my child’s face was going to continue to disintegrate and he acted as if that was a funny question to ask, but SERIOUSLY IS HIS FACE GOING TO CONTINUE TO DISINTEGRATE, I DIDN’T REALIZE IT COULD START TO DISINTEGRATE.

Cheek disintegration suggested to the doctors that this could be a fungal infection rather than a bacterial one; fungal infections are apparently another thing that can happen with immunosuppressing medication. They cultured everything, but didn’t get any decisive answers: one doctor mentioned they’d found some bacteria, but later more than one doctor mentioned finding no bacteria and no fungus. At first I thought that was a good thing (LESS bacteria/fungus in my child’s face) but it’s not exactly good: if they don’t find what it is, they don’t KNOW what it is, and that can make it harder to treat.

One of Paul’s co-workers gets a lot of sinus infections, and she was interested in the antibiotics, so I’ll put that here. The first doctor gave him cefuroxime, also called Ceftin; that’s the one that didn’t work. I don’t know what exactly he got by IV: he got a dose of something in the ER, and then they put him on two different IV antibiotics in the hospital; after a day or two, they took him off the one that was for antibiotic-resistant bacteria, because they felt that was not as likely to be the situation. They sent him home with cefpodoxime, which they said was fairly equivalent to the other of the IV antibiotics.

If you have any questions, like about things that I might not have thought to compare to regular sinus infections, I can attempt to answer those too.

Hospital

I wrote a long post about where I was right now (children’s hospital) and why I was there (Edward sinus infection), and when I proofread it later, I noticed it was very boring. So I re-wrote it and made it a lot shorter, hoping that that would reduce the boredom if only by reducing the bulk, and I was also very charming about how much I like being in hospitals. Then I hit post, and that is when WordPress, which is what I used to write this blog, asked for my password, and I gave it, and when I had entered the password, it brought me to the old version of the post. Usually when this happens (why does it ever, EVER happen???), I can get the other post back. This time, nothing worked. I am starting to feel as if the universe is trying to protect you from a long boring post and/or a post in which I brag about my own charm.

I will SUMMARIZE why we are here, as I did in the SECOND version, the version that was lost. Friday night Edward seemed ill and had a fever. Saturday morning I took him to Urgent Care, and the doctor said it was a sinus infection and prescribed an antibiotic. Tuesday I called the pediatrician to say he was no better, and they gave me an appointment that morning, and at that appointment they sent us to the Emergency Room. The Emergency Room did a CAT scan and labwork, and sent Edward by ambulance to the children’s hospital in the nearest big city, and he started IV antibiotics. Wednesday evening Edward had surgery to get stuff out of his sinuses. Today we are seeing how that went and whether he will need a second surgery. We have been here for two nights and will be here for at least a third night.

Boy, that is still pretty long. You will have to take my word for it that the original version gave that same information (plus more detail than anyone would want about which doctors we saw and what his symptoms were and the entire evolution of the treatment plan) in triple the words.

I will now tell you some reasons you might want me as your hospital companion, and I will try not to be as obvious about my own charm. …No, I have tried several drafts, and there is no way to do it. I am just very charming about hospitals. Except: there is a shower in our room, and I don’t know if I’m allowed to use it or if it’s just for the patient, and I’m too shy to ask, and there are no towels so I can’t just sneak one, and also there are people coming into the room continually but unpredictably, so I feel as if the MOMENT I stepped into the shower, an entire team of medical professionals would arrive. And a person might think, “Well, of COURSE you are allowed to use the shower! That is what it is THERE for!”—except that when I stayed in the maternity ward long ago, the nurses were Very Strict about the room’s bathroom being ONLY for the patient, NOT for guests. And it wasn’t just the shower: guests were not allowed to use the toilet, either. Guests were supposed to use the bathroom down the hall. And “guests” included the baby’s other parent. So I think it is VERY POSSIBLE that this shower is only for Edward, and that’s why there are no towels in there, because he cannot shower yet. And you may well sigh with impatience about my reluctance to JUST ASK, WHAT IS THE HARM IN ASKING, but you KNOW staff can get a little snippy about things like that, you KNOW they can. Like, SOME of them will say really nicely, “Oh, I’m sorry, the shower is only for patients!” and seem genuinely understanding and regretful about it, but OTHERS of them will act as if you’ve suggested violating HIPAA in there.

(More about this sinus infection if you’re wondering “Wait, how did a sinus infection lead to hospitalization?”)

College Shopping / Packing List; Credit Card for College Students

(image from Amazon.com)

You may have noticed that there have been far fewer college-fret posts about William than there were about Rob. I do think I’m calmer this time. On the other hand, much the way every month I think “Ug, everyone is INTOLERABLE and I am so HUNGRY and I feel like CRYING AND/OR SCREAMING!!” and then notice it’s been approximately 27 days since I last felt that way, I keep thinking “Why do I feel as if I am so stressed I can’t cope, when really I don’t have a whole lot going on?,” and then locating the center of that feeling somewhere in the pile of accumulating college gear.

Just now I checked another task off my list by adding him as an authorized user to our credit card account. Did you know you can do this? Two years ago with Rob, we were trying to get him his own credit card and he was getting denied by all the decent cards because he had no credit score and was only 18 and had only a summer employer and so on. I don’t remember how we found out that we could just get him his own card on our account, but that’s what we did. Not only does this mean I still receive the bills and can see all his charges, it also means he builds a credit score based on my frankly excellent credit-card handling—so by the time he graduates college, he ought to be able to qualify for his own credit card. Plus, it gets him accustomed to using a credit card, which is a good life skill and something I think it’s good to learn before the parental-supervision stage of life is completely over. It’s worked beautifully with Rob so far, and today I added William. It’s a task that’s been hanging over my head, and it took like 10 minutes, and 9.5 of those minutes were finding the right section of the website.

I’ve also been doing a lot of shopping. Some of it, like shopping for first-aid stuff, I can do without William’s input; other things have been making me crazy because I am waiting for him to choose, for example, his Twin XL bedding, and he is NOT CHOOSING IT. JUST CHOOSE SOMETHING. JUST CHOOSE. JUST LOOK AT THE OPTIONS AND PICK A COLOR. WHY IS THIS TAKING SO MANY NAGGINGS.

In case it would be of any use to anyone, I am going to post below the packing list I’m working with, with links to anything I myself would like to see links to on someone else’s list. This list is based in part on William-in-particular, part on William’s-college-in-particular, and part on college-packing-lists-in-general. For example, I removed hairbrush and conditioner and backrest, which were on Rob’s packing list, because William uses none of those; I added hair dryer/gel/putty and chopsticks and fidget toys to William’s list, even though they weren’t on Rob’s; I don’t have mini-fridge on there even though a lot of colleges include it in the suggestion list, because so far William isn’t planning to bring one.

Oh, also, there are three things at the top of the list that are not for the dorm but for the move-in process. I must have gotten the first two ideas from someone else (or maybe from Rob’s college?), because I had forgotten them completely: you bring water and food because the check-in process can be long and tiring and stressful and scheduled right at a food time; you bring umbrellas and a couple of trash bags in case it’s pouring rain during move-in and you need to protect your stuff. The third thing, the drop-off/parking pack, is what the college sent to us and has asked us to bring along for the move-in process; Rob’s college had something similar. It’s, like, a little card to display in the windshield, and tags for the suitcases, and maps and instructions and so forth.

Oh, also-also, on the recommendation of a friend who had recently sent a kid off to college, I bought a set of these bags when they were down to $16:

(image from Amazon.com)

Ikea Frakta storage bags. I like the way they fold up nice and small when he’s not using them, unlike suitcases. I will try to remember to report back when we’ve given them some use.

 

College Packing List

bring water and food
bring umbrellas and a couple trash bags
drop-off/parking pack

first aid kit:
Benadryl
bandaids
antibiotic ointment
hydrocortisone cream
Dayquil
Nyquil
cough syrup
cough drops
ibuprofen
thermometer
Tums
vitamins

tweezers
nail clippers
hair dryer
hair stuff/gel/putty

toothbrush
toothpaste
floss
retainer
mouthwash
bathroom cup
Efferdent for retainer

sheets
comforter
throw blanket
pillow
mattress protector

shower caddy
shower shoes
towels & washcloths
bath pouf
shampoo
body wash
razors
shaving gel
condoms
athlete’s foot preventative

deodorant
body lotion
face lotion/products/toner

laundry detergent
fabric softener sheets
stain treatment
hangers

desk lamp
poster putty
pens
pencils
calculator
stapler
scotch tape
packing tape
notebooks
notepads
ruler

microwave-safe plate
microwave-safe bowl
microwave-safe mug
chopsticks
snacks

clothes
winter clothes
khaki pants
nice shirt
laundry bag
winter coat
light jacket
hat
winter gloves
snow boots
umbrella

books
fidget toys
laptop & charger
phone & charger
headphones
backup battery
usb drive & cables & dongles & whatnot
little fan
earbuds

debit card
bank account info / check register
credit card
insurance card
driver’s license
Social Security card
college ID
passport
some sort of system for important documents

Road Trip

I am back from an assortment of short vacations/road-trips (people who chose the postcard subscription in the fundraiser will get this month’s postcard from the road), and so today I am feeling mixed feelings: the fun is over and so is the vacation/road-trip food, but on the other hand I have my familiar shower and my non-travel-size hairbrush and my full assortment of clothing.

I’d ordered some earrings from Etsy before I left (I ordered a duplicate pair to go into one of the fundraiser care packages), and they were waiting for me when I returned. It is challenging to take a picture of one’s own ear, but I persevered until I got at least a mediocre picture:

daisy earring

 

One of the things I find discouraging on road trips is getting a glimpse into how very many women feel comfortable peeing all over toilet seats. I remember learning in psychology class that the human brain will work very hard to take a person’s behavior and force an explanation for it that lets it align with their concept of themselves as a good person doing the right thing, and I am wondering how anyone’s brain manages that feat in the case of peeing all over a toilet seat and then leaving that pee for someone else to have to clean up. Perhaps we should have a couple of special stalls reserved for people who don’t want to sit down, so that we are not wasting nice clean seats for other people, and to minimize the number of peed-on seats for the people who clean the bathrooms.

While I’m complaining (I am drinking black coffee after a week of adding, for example, Hershey’s syrup and heavy cream, so my mood is iffy), I would like to complain about how frustrating it can be to share the road with other people. I’ve noticed that if the speed limit is 55mph, I can usually cruise along contentedly in the same lane without needing to pass—but when the limit is 65mph, I have to keep passing people in order to go the speed I’d like to go. And it happens again and again that I am stuck behind someone going about 60mph, and then as I attempt to pass, their speed climbs and climbs until we are twinning it along the road at 75mph and I still can’t pass them. I am familiar with the right-lane phenomenon of “Oops, someone is passing me and that makes me notice I am going slower than I want to be going, better pick up the pace!” so I try to be understanding, but it happens SO OFTEN! How can SO MANY people just be noticing their speed as I pass them? And could they perhaps let me pass them and THEN pick up the pace? That’s what I do when it is me in the right lane, because I am ALSO familiar with the left-lane phenomenon of trying to pass someone who is going faster and faster. EMPATHY, everyone; EMPATHY.

Another complaint: people who are UP IN MY TRUNK as I am in the passing lane, when I am going Nice and Fast but also can’t go any faster than the person in front of me in the same lane, and/or can’t get over to the right because there are cars there. If I could say ONE THING to The Car Behind Me, it would be something like: Look WIDER than just the back of my car. This is not a case of my one single car unfairly blocking someone’s way by going deliberately slow in the fast lane. I CANNOT go faster than the person in front of me. I CANNOT get over to the right if there is a car to my right. I am JUST AS STUCK as the person behind me, so could I have A LITTLE SPACE. We are going VERY VERY FAST and it seems like the safety distance should be more than three feet.

The last time I was on a road trip, there was a scary situation where someone switched into my lane without looking, and luckily I had noticed that it looked like they were about to do that, and luckily I had time and space to scooch over to the lane to my left and avoid the crash. It was a lot closer than I would usually like to cut it, but it was an emergency. The guy I cut in front of LEANED on his horn, pulled so close behind me I was sure he was going to hit me, swerved his truck back and forth, was visibly flailing his arm and shouting. He did this for several minutes. Like, was he attempting to communicate that he felt my driving had been unsafe? In that case, why was he communicating it by being WAY WAY WAY MORE UNSAFE? It is a mystery. When I was finally able to get back into my own lane, he drove beside me for another minute or so, continuing to honk and shout and gesture. My good sir, you are teaching me nothing about road safety/manners.