It is very weird to me that if you were to think of me at all, you would imagine me going about my usual life: working at the library, doing dishes, playing Candy Crush, scrolling Twitter, fretting at the grocery store, doing laundry, procrastinating phone calls. You would not know (and would have no way of knowing) that actually I have been here at the children’s hospital with Edward since Wednesday morning. We left our house at 7:15 a.m. to drive to the big city for a morning appointment with an ENT doctor, and at that appointment the doctor checked him over and then admitted him to the hospital, and he got surgery that afternoon on an abscess in his neck.
This is his sixth abscess in 2.5 years if I am counting right, and sixth surgery (one of the abscesses didn’t need surgery; one of them needed two surgeries), and I am hoping that now we can finally start talking about PREVENTATIVE MEASURES or something, because abscesses are gross and scary and the post-surgical care involves drains/wicks that are gross and uncomfortable, and my child is getting increasingly scar-covered. I think it’s been a little difficult to figure things out because the abscesses have been far-flung: first he had a sinus abscess, so that just seemed like maybe a sinus infection gone bad; then he had one on his rear, so that seemed Crohn’s-related—but then he got one on his leg, another on his rear, and then two on his NECK?? and so I think it’s taking awhile to see this as An Abscess Issue as opposed to a collection of random unconnected situations for different specialists to deal with separately.
Anyway, this is the third day in the hospital, and I am very glad that the LAST time we were here, I made a LIST; and also that I resolved that ANY TIME we were here for a check-up on any sort of Concerning Issue I would pack a bag. So I have changes of socks/undies/shirts; I have shampoo and dry shampoo and deodorant and baby wipes; I have books and my laptop; I have chargers for everything; I have (well, had) a giant chocolate bar and a can of Pringles.
It is not happy or comfy to be in a hospital during a Covid peak, but we do not seem to be in a Covid-patient area of the hospital—not, I guess, that I’d know. But the floor is not crowded, I’m not seeing any big warning signs on doors, everyone seems normal and relaxed except that we’re all wearing masks. If you are interested, the rule here is that Edward does not have to wear a mask in his room; I have to wear one if anyone comes into the room but not when it’s just Edward and me; we both have to wear masks anytime we leave our room. Edward was given a Covid test on arrival, and was asked about his vaccination status; I was not tested or asked.
I have found that even my fretful brain is willing to go mostly into Whatcha Gonna Do mode about this. We have to be here. This air is our only option. My brain has instead turned its fretting toward Edward’s Covid booster shot, which is supposed to happen in two days. Probably I should reschedule it. We might not even be home by then. Well, we’ll probably be home by then. But they don’t want to give a vaccination to someone who just had surgery and is on antibiotics, do they? Or do they? Maybe I should give poor Edward a little break between one Medical Thing and the next. But maybe this recent hospital stay shows just how important it is to get him anything that can protect him, and it’s just a booster shot. fret fret fret fret fret fret fret [Update: I asked one of the doctors, and she said it was indeed a balancing act, and that she would give it more thought and get back to us; but that her initial thought is that he should wait until he is done with this infection, for a reason I wouldn’t have expected: it’s because we need to watch him very closely for fever, and if he got a fever from the booster, they would need him to come back to the hospital just in case it was abscess-related.]
There is no aspect of a hospital stay that you have not already heard discussed by every single stand-up comic—but it really is uncanny the way they wake you up just as soon as you go to sleep. Yesterday we had vast stretches of time in the afternoon when no one came in—and then Edward drifted off to sleep, and five minutes later someone came in to check on him. They left; a stretch of time elapsed; he drifted off again—AND SOMEONE CAME IN AGAIN. And yesterday evening, we spent a long time alone waiting to go to bed until after his vitals check, then we got into our beds and turned off the light—and WITHIN A MINUTE, someone came in; and then ten minutes later, SOMEONE ELSE CAME IN. Also, the ENT team does their rounds BEFORE DAWN and it is not my favorite alarm clock, to have six people come into the room and turn on all the lights and start asking questions. I understand there must be reasons for the timing. But.