Hello, still from the hospital! This morning when a crew came into the room at 6:30, it sounded as if I might not even have enough time to zip downstairs and acquire a coffee before they’d be whisking Edward away for a second CT scan and then a second surgery. (A nurse told us last night she’d been told to have him stop eating/drinking at midnight, which was our first clue that something might be happening today.) I fairly FLEW for the coffee, then flew back, panting. At around noon, they finally came to get him for the CT scan. We have become familiar over the years with the concept of Hospital Time: things happen when they happen, and not when anyone says they’re going to happen, and the term “soon” means “in the future, that’s all we can say”—but it still fools me from time to time.
What I should have done was race down to get some lunch right after the CT scan, since we knew it would HAVE to take at least a certain minimum amount of time before the results could be evaluated/communicated—but I didn’t think of it. I was still in foolish Poised For Action mode, plus I wanted to update family members. Then it was 2:00 and I hadn’t had lunch, but now it really did seem as if any minute the doctor might come in and want to talk about the CT scan and discuss surgery options, so I didn’t feel I could go.
The ENT doctor/surgeon came in around 3:30 and talked about how things were kind of inconclusive, and that one option was to send us home and have us come back Thursday—so we could at least get a couple of normal nights of sleep. He said he would go talk to Infectious Disease (that’s the department handling the antibiotics, and they decide when it’s okay to switch from IV antibiotics to oral ones) and get back to us. He left, and about ten minutes later the Infectious Disease doctor came in to talk to us, and we told her the ENT surgeon was looking for her, and right around the time she was done talking to us her pager went off and it was the ENT surgeon, and she said she would go talk to him. It is now 7:00 p.m. and no one has come back. I guess we are staying another night? The nurse did come in and say Edward could eat and drink again, so in any case we know surgery is not imminent; he had a nice big dinner and is feeling a lot cheerier.
There are several things that would vastly improve The Hospital Experience for me. One of them is not even something I’d waste a wish on, which is that I would love it if things happened when people said they were going to happen—but I know that is not possible/realistic. I think the more realistic wish (not that I will get this wish, either) would be to NOT HAVE the consistently-wrong predictions. I remember when I worked at a pharmacy, I would start adjusting the time I told people the prescription would be ready, as prescriptions piled up: so, like, if we only had one prescription to fill, I’d say it would be 10-15 minutes (and often we could do it quicker than that); but once we had half a dozen prescriptions, all for people who wanted to wait for them instead of coming back later, I would be saying 30-40 minutes; and if we hit more like 10-12 waiting prescriptions, I would say I was afraid we were rather backed up and it would be about an hour. My boss did not like that, and wanted me to say 10-15 minutes to everyone. But I know for myself, the absolute WORST is to be told 10-15 minutes and have it be an hour! That’s the WORST! If I KNOW it’s going to be an hour, I can choose to come back later! If I am TOLD it will be 10-15 minutes, I will notice and count and resent EVERY SINGLE EXTRA MINUTE! And my BOSS was not the one who would have to deal with those absolutely-justified noticing/counting/resenting people!
Where was I? Oh, yes. So I would not even think to try to fix Hospital Time, because obviously there are always going to be things that take longer than expected, and emergencies that have to be dealt with, and unexpected complications, and so forth; and it is in everyone’s best interest for doctors and other medical professionals to take the time things NEED, and to take care of situations in THE ORDER THAT MAKES THE MOST SENSE. But I WOULD enjoy it if people didn’t make predictions when they KNOW, FAR BETTER THAN I DO, how unreliable those predictions end up being. I feel like a lot of hospital people are like my boss at the pharmacy telling everyone it will be 10-15 minutes even when they know it’s going to be an hour, and that’s not good for anyone. (There ARE some hospital people who will say things like “They say 2:00, but–*HUGE SHRUG*–you know how these things go. We’ll just see!” I love them.) (Their bosses probably tsk at them.)
The second thing that would vastly improve The Hospital Experience for me would be having one or two times per day when I could be assured that no one was going to come in with anything important. If I just knew that between 11:00 and noon, or 1:00 and 2:00, or 9:00 and 10:00 at night, NO DOCTOR WOULD COME IN, then I would know when to take a shower, or run downstairs for coffee, or go for a little walk, or use the bathroom. Just as it is comically uncanny how people in a hospital will come into the room the minute you doze off, it is comically uncanny how we will be in the room for hours and hours and hours undisturbed, and then I will go downstairs to get a coffee, and when I come back 10 minutes later Edward tells me the doctor was there while I was gone. (The doctor, probably: “Nurse, please page me when The Mother leaves the room.”) Or I finally decide I will risk a shower, and I am undressing in the bathroom and I hear a knock at the room door and then I hear the doctor’s voice. For heaven’s sake, what is a person to do?? Just tell me even HALF AN HOUR A DAY when I can COUNT ON being unmissed. Right now, in fact, I would like to take a shower, since evenings in general seem less busy/doctory than mornings. But sometimes a doctor comes to see us after handling their last surgery of the day. When is it definitely safe to take a shower? After 9:00 p.m.? After 10:00 p.m.?
The third thing that would vastly improve The Hospital Experience for me would be if someone came through each day and checked on supplies, just automatically, perhaps when they came to collect the trash. I hate having to tell A REGISTERED NURSE that we need more toilet paper, as if I think she is our personal servant. And you were all SO helpful last time I was here and was afraid to ask about towels, but I was STILL AFRAID AGAIN TO ASK ABOUT TOWELS. (Partly because I wasn’t sure if Covid restrictions might apply to the showers, but mostly because I am as ever a wee sleekit cowrin tim’rous beastie.) I wish there were towels already in the room, and also sheets so I could change Edward’s bed when the medication makes him all sweaty, and really I just wish I had access to all relevant supplies so I could do my own fussing/housework and didn’t feel like I was constantly asking for things / asking for people to do things. I know it’s NOT like this, but it FEELS like I am snapping my fingers and demanding room service. I was so happy and relieved when I realized that I could take our finished meal trays out to a cart in the hall, instead of the nurses having to do it for us. Surely there are other things like that that I could be doing if I only knew! But I think for most of the things I just CAN’T: I don’t have access to the sheets or the towels or the toilet paper.
The fourth thing that would vastly etc. etc. would be a good gift shop. Our local hospital is not anywhere near as well ranked as this city hospital, and they do not specialize in children (they’ll take out children’s tonsils or set their broken bones, but as soon as Edward needed a more extensive procedure they sent us here), but they have (or used to have—I haven’t been there since Elizabeth got her tonsils out, and that must be about a decade ago now) a really good gift shop. They have the expected stuffed animals and toys and cards and flowers, but also it’s like a small drug store: they have over-the-counter medications, pads and tampons, a small section of socks and underwear. Here, I have to leave the hospital and walk to a drug store, which does not sound so bad when I type it out, but I am not a city mouse and would prefer to stay tucked into the hospital—especially now, when there are screening stations to navigate at the entrances.
And the final thing is that I would love to be able to order Edward’s meal trays ONLINE. I have to use the phone every single time, and I would say 9 out of 10 times I get someone brusque who sounds like they hate their job, and often it’s someone who is pointlessly trying to correct the way I’m ordering (“No, ketchup is a condiment, tell me that at the very end”), when their colleagues have corrected me the other way (“Hamburger, okay—you want ketchup or mustard or anything with that? And fries, okay—you want salt and ketchup with those?”). And why correct ANYONE, when most of us are merely passing through and no one will be long-served by these educational efforts, and it will only frustrate the employees who will feel as if they SAY it and SAY it and no one EVER LEARNS?